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Support of Lupus Awareness Month

Wednesday, May 26th, 2010

RocknBauble.etsy.com announces Support of Lupus Awareness Month

Lupus Awareness Bracelet Earring Set by RocknBauble

Lupus Awareness Bracelet Earring Set by RocknBauble

RocknBauble.etsy.com announces its Support of Lupus Awareness Month with a Donation of 10 Percent of the Proceeds from the Sale of its Lupus Awareness Jewelry.

Lupus Awareness Month is May and one of several observances promoted by the Lupus Foundation of America. RocknBauble.etsy.com announces it will support Lupus Awareness Month by donating 10 percent of the proceeds from the sale of its Lupus Awareness Jewelry line. Custom Lupus Awareness bracelets, necklaces, earrings and book thongs are being offered through the RocknBauble storefront located on the ETSY website (www.RocknBauble.Etsy.com) “I am excited to assist this cause with creating custom Lupus Awareness Jewelry and donating part of the proceeds to help support Lupus Research, ” said Andi (Lupus Jewelry Artist). Jewelry for all awareness colors and causes is available with a percentage of the proceeds to be given to the cause the particular piece represents and we will place an emphasis on Lupus this month.

About Lupus Awareness Month:

Lupus Awareness Month is one of several observances promoted by the Lupus Foundation of America (www.lupus.org) to increase visibility for lupus. The LFA and its chapters designated May as Lupus Awareness Month to incorporate other related events into the observance. The Lupus Foundation of America estimates that 1,500,000 Americans have a form lupus. This estimate is based on two nationwide polls, which asked respondents if they, or anyone in their immediate household, had ever been diagnosed with lupus. In addition, another poll revealed that 28% of all Americans know someone with lupus. Lupus is a chronic autoimmune disease that, for unknown reasons, causes inflammation and tissue damage to virtually any of the body’s own cells, tissue, and organs – especially the skin, joints, blood, heart, lungs, kidneys, and brain.

About RocknBauble:
RocknBauble.com owner and jewelry artist Andi Vogel states, “As a nurse I like to heighten the publics awareness of Lupus and all other awareness causes, donations from my awareness jewelry adds support to these causes.” Andi fashions her awareness jewelry by hand and meticulously selects all materials so each piece is unique. Butterflies, Baubles, Stars, Lampwork Beads, Furnace Glass, Czech Republic Crystals, Swarovski Crystals, Fresh-water Pearls, Sterling Charms, Hearts and Puzzle pieces are used in this high quality jewelry, as well as some highly desirable variations and more unusual settings most of which are hand crafted by local and international artisans. Andi’s flair for style and eye for color shines through in every awareness creation.

Visit her storefront at www.RocknBauble.etsy.com

Home Page is here www.RocknBauble.com

Lupus Foundation of America Collaborates with Feds to Expand Medical Education

Monday, February 15th, 2010

Lupus Foundation of America Collaborates with Federal Agencies and the U.S. Surgeon General’s Office to Expand Medical Education on Lupus

systemic-lupus-image(Washington,DC) Representatives from the Lupus Foundation of America (LFA), along with 22 national organizations, attended the first consortium meeting aimed at developing a national health care provider education initiative to improve lupus diagnosis, treatment, and management among minorities. The meeting, held at the American College of Rheumatology offices in Atlanta, Georgia from January 12–14, 2010, was facilitated by the U.S. Department of Health and Human Services’ Office on Women’s Health (OWH), and Office of Minority Health (OMH).

According to an LFA survey, a person waits on average three years and visits four doctors before receiving an accurate diagnosis of lupus. More than 90 percent of people with lupus are women, and it is two to three times more common among African Americans, Hispanics, Asian Americans, and Native Americans. Physician and health care provider education is critical to improving the early diagnosis and management of lupus, and ultimately preventing the life-threatening consequences of the disease, particularly among those most at-risk for the disease.

An estimated $1.6 million is available for the initiative entitled, “Eliminating Disparities in Lupus Through Education and Training for Health Professionals” (EDLET/HP), which ultimately seeks to expand and promote the utilization of more comprehensive lupus curricula in medical and nursing schools, and among health care professionals and professional associations.

It is estimated that 80 percent of Americans know little or nothing about lupus. For far too long there have been limited resources to address the patient, public, and professional education gaps in lupus. In part, the first-ever Ad Council public awareness campaign on lupus sponsored by the OWH launched last year began to address the long-standing need to raise awareness and close the gap. The LFA is the Founding Partner on the campaign, “Could I Have Lupus?” which is directed at those most at-risk for developing the disease, and urges individuals who may be experiencing symptoms to ask their doctor about lupus. The EDLET/HP initiative is the health care professional counterpart to the Ad Council campaign.

“The LFA commends the Office of Minority Health and Office on Women’s Health for the foresight in developing these initiatives,” said Sandra C. Raymond, LFA President and CEO. “We also want to thank lupus advocates across the United States for bringing to Congressional attention the urgent need for comprehensive patient, public, and professional education programs on lupus.”

This year, the LFA will be hosting its 12th annual Advocacy Day program in Washington, DC from March 15-16, 2010. It is an opportunity for individuals to educate Members of Congress about lupus, and encourage them to support more funding for lupus research and education programs. To learn more Advocacy Day or to register, visit www.lupus.org/advocacyday.